I'm sorry it's been a while since I have posted. It's been a long two weeks for my girl. We are trying to get her straightened out with her pain meds and her nausea meds. If she gets the slightest headache she starts vomiting. If she eats something it usually winds up making her sick because her taste has changed. This actually began prior to chemo and then chemo just made it more intense. She had to have a hearing test because they will be monitoring for hearing due the cochlear nerve being most involved in the tumor and the radiation. While we were there I asked the doctor about the taste and he said it's probably all of the meds she is on. Most of the meds she is taking is giving her dry mouth and thankfully this is an easy fix, she will just rinse and brush with biotene. Hopefully it works. Her meds were changed last week because the Ativan and hydroxyzine combined with the oxycodone just kept her fatigued and she couldn't get out of bed. The new meds were working pretty good up until a day or so ago. They are extended release so they should last longer then they are. I don't know if it's because she is now off the steroids and that was helping a lot more than we thought. I just feel like we are going in circles and no matter what we do she will be so sedated from all the meds. I can't stand seeing her like this.. She has laughed maybe a handful of times and anyone who knows Dariana she laughs and everyone can hear it. I miss it. I am physically, mentally and emotionally tired and I am tired of being tired. If we could just get through these rough days sooner than later I would be okay. We go to clinic again tomorrow and Tuesday she has her EKG and echocardiogram. Hoping this weeks is better than the past two.
Hope, Faith and Encouragement!
Hope, Faith and Encouragement!