Hello everyone! It has been a long time since I have posted.... It's been a very busy summer so far, which is good, that means we are healthy and enjoying each day. Dariana was in Greece for 25 days, I missed her like crazy but she deserved to get away and have a wonderful experience. We are very thankful to Sophia Amperiadis and her family for taking such good care of her and accepting her in to their home. She came home on a Friday and the next day we left to Florida for a week. Thank you to the McElroy family (the Ryan McElroy foundation) and to Marina putting this trip together for us and allowing us to escape from everything in NY and just relax as a family. They have been truly amazing with all they have done for Dariana and the family.Dariana is now volunteering at vassar hospital 3 days a week four hours a day. She is primarily working on the oncology floor but gets moved around to other floors. It is a great experience for her, she has decided she wants to become a nurse practitioner for pediatric oncology. She is already looking into which school will get her the best education and experience. She has been feeling really well and has been just doing what normal teens do. She is driving now, growing up way too fast! I am just happy that she has come so far from where she was a year ago and we pray she continues on this path. It is hard to believe but August 30 will be year from when we walked out of the hospital from her last round of chemo and never looked back. September 2 will be her next set of scans so we are getting a little scanxiety but that will never change. She hasn't had any complaints beside the normal soreness from the scar tissue. So are are keeping our fingers crossed that means clear scans! I am hoping to do a toy drive for the children at Columbia hospital for Christmas. I will post details in the near future about it! Thank you for all of your continued support and prayers! Hope, Faith and Encouragement!
I am asking everyone to please keep the Niclaus family in their prayers and thoughts. I have you asked in the past for you all to pray for Hailey and I appreciate all of your support. Hailey has relapsed for the third time Nut there are no options left to try for Hailey. My heart is broken for this family. They battled this beast for over 2 years and never once have up. I am angry because Hailey should not have to go through this, she has been fighting her whole life, how is that fair!? So many people take the little things for granted and never realize how many parents have to watch their child fight for their life for it to only come back and have it take their baby from them. I cannot get them off my mind. I want to be able to take this all away from them. How far this world has come and there is still no cure for cancer! How is that even possible!? Why?! I just don't understand! I am feeling helpless and broken for them! Please just pray for them! No family should have to deal with this!
On our way done for CT scan and blood work. Praying for clear scans and good blood test results! Hope Faith and Encouragement!
Happy summer! It's that time of year! Dariana will be having her 8 months scans on Friday! They are doing it a month early because she will be in Greece in July. She has been feeling good. Today she goes for her drivers license. She has been practicing and doing great but we hear Poughkeepsie is a tough one appearing it goes smooth! Please keep her in your thoughts and prayers as she takes her scans and through her travels. Faith, Hope and Encouragement!
Happy Father's Day to all of the dads! Make memories that will last a lifetime! Enjoy the day surrounded by those you love today!
Happy Mother's Day to all of you amazing moms! Hope your day is filled with lots of love and happiness! Make some more memories that you will carry forever!
On May 17 from 9-5 there will be a fundraiser for pediatric bone cancer hosted by Marie Passaro. It will be held at Rosa's Deli in the Country Commons Plaza located at 1520 route 55 in Lagrangeville. Marie is hosting this fundraiser in honor of Dariana. I ask that everyone come out to show your support. Please spread the word. Dariana and family will be there and would love to meet all the amazing supporters who have walked with her through her journey thus far! She would love to say thank you! So please come out and spread the word! Thank you Marie! We can't wait to see everyone!
6 month scans are CLEAR! I want to thank each and everyone of you who have and continue to support Dariana the ought this journey. Scan time will always create a lot of anxiety but it is extremely comforting to know there are so many people supporting us. She goes back for scans in June prior to leaving for Greece. She follows up every 3 months now for the rest of this first year! One more milestone! Hope, Faith and Encouragement! Xoxoxo
Please keep Dariana in you thoughts and prayers tonight and tomorrow. Tomorrow is her 6 month scans. She is having her PET scan and Ct scan and her immune work up. Praying for good results all around! Thank you! Hope, Faith and Encouragement!
|
Updates from Dariana and Lisa.
|